Colin Farrell is speaking out about his son James’ diagnosis with Angelman syndrome and his dedication to supporting those with intellectual disabilities.
“I want the world to be kind to James,” Farrell told People regarding his eldest child, who is nonverbal. “I want the world to treat him with kindness and respect.”
Understanding Angelman Syndrome
According to the National Institutes of Health, Angelman syndrome is a genetic disorder that primarily affects the nervous system. It results in delayed development, intellectual disability, severe speech impairment, and problems with movement and balance. Seizures are also common.
The NIH estimates that 1 in 12,000 to 20,000 people are affected by Angelman syndrome, with life expectancy being “nearly normal.”
Challenges as James Turns 21
With James’ 21st birthday approaching next month, Farrell noted that many support systems for families with children with disabilities expire at this milestone.
“Once your child turns 21, they’re kind of on their own,” Farrell explained. “All the safeguards that are put in place—special ed classes, for example—disappear. You’re left with a young adult who should be an integrated part of our modern society but is often left behind.”
Taking Action: The Colin Farrell Foundation
To address this gap, Farrell is launching the Colin Farrell Foundation, which, according to the organization’s website, “is committed to transforming the lives of individuals and families living with intellectual disabilities through education, awareness, advocacy, and innovative programs.”
The Banshees of Inisherin actor shared that he has wanted to do something like this for years. It was a “no-brainer” to honor James and help others like him achieve autonomy and a sense of community.
Farrell expressed his admiration for his son, saying, “James has worked so hard all his life. I’m proud of him every day because I just think he’s magic.”
